Abstract

ARCOS, Blanca A.; LOPEZ, Verónica M.; LUZ CASAS, María de la  and  MARTINEZ, Víctor M.. Bioethical reflections on the consent of persons with disabilities in health decision-making. Med. ética [online]. 2021, vol.32, n.2, pp.407-441.  Epub Aug 14, 2023. ISSN 2594-2166.  https://doi.org/10.36105/mye.2021v32n2.02.

In medical care and health research, it is essential to promote decision-making by patients and/or participants under the principle of autonomy. In particular, this capacity, stated in the Convention on the Rights of Persons with Disabilities, is made concrete through the detection of needs for assistance, adjustments and support that give way to a full and effective capacity for exercise.

The bioethical reflections made from a principled, personalist and human rights perspective offer elements to enhance the autonomy of persons with disabilities, promoting the figure of personal assistance and emphasizing the best interest, gradualness and permanent judicial review as principles of substitute figures.

Keywords : autonomy; competence; CIF; UN Convention.