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Enfermería universitaria
versão On-line ISSN 2395-8421versão impressa ISSN 1665-7063
Resumo
CONCEICAO-SANTOS, D.B. et al. Social aspects, work overload, and quality of life among mothers of children with microcephaly. Enferm. univ [online]. 2021, vol.18, n.2, pp.32-47. Epub 16-Maio-2022. ISSN 2395-8421. https://doi.org/10.22201/eneo.23958421e.2021.2.947.
Introduction:
Taking care of children with microcephaly is a great challenge for their care providers because of the associated social vulnerability, work overload, and loss of quality of life.
Objective:
To analyze the associations related to the social aspects, the quality of life, and the work overload among care providing mothers of children with microcephaly.
Methodology:
This is a transversal study with 105 participants. Social and demographic questionnaires and WHOQOL-BREF were used. ANOVA tests, Student’s t-test, and Pearson’s correlation coefficient were calculated.
Results:
65.7% were of mixed ethnicity; 88.6% were unemployed; 76.2% were dependent on Social Welfare; 50.5% had a low level of education; and 90.5% were financially insufficient. The social domain average was considered low (51.11). An association was found between social benefits and quality of life (p=0.046). 39% of these mothers suffer from severe work overload while 30.4% suffer from intense work overload. An association was found between the levels of work overload and ethnicity (p= 0.027), occupation (p= 0.043), and transportation means (p <0.0001). Work overload had a negative impact on the quality of life (r= -.463, p <0.0001), the perception of quality of life (r= -.476, p= <0.0001), and total quality of life (r= -.576, p= <0.0010).
Conclusions:
These care providing mothers suffer work overload with an associated loss of quality of life. Social aspects have a direct influence and can increase work overload. Nursing professionals have a fundamental role in the creation and implementation of attention initiatives aimed at promoting health and relief to this kind of care providing mothers.
Palavras-chave : Quality of life; care providers; microcephaly; mothers; Zika virus; congenital anomalies; Brazil.